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Self-management for lymphedema

Self-management of lymphedema means gaining a thorough understanding of your condition and learning how you can play an active role in its treatment.

Essential aspects of self-management include practicing Self Lymphatic Drainage and consistently using compression garments as part of your daily routine. Self-management is crucial for effectively managing the symptoms of lymphedema.

After receiving a lymphedema diagnosis, you may feel overwhelmed by the fact that it can't be cured and by its time-consuming therapy. It can seem as though lymphedema and its treatment dominate life. Progress in lymphedema treatment can be gradual, making it challenging to stay motivated and committed to therapy. However, with consistent self-management and support, many individuals find effective ways to manage their condition and lead fulfilling lives.

This is why self-management has become an important part of Complex/Complete Decongestive Therapy (CDT). Its integration into CDT aims to prevent edema rebound and ensure the long-term success of your treatment.

Self-management means developing a deep understanding of your disease and learning ways to manage your lymphedema on your own or together with your carers. Understanding how the lymphatic system works, recognizing the signs and symptoms of lymphedema, and grasping the principles of its treatment can help you to address treatment challenges with your healthcare professional or your health insurance provider.

Self-management encompasses techniques for managing your disease independently. With the guidance of an experienced therapist, you can learn Simple Lymphatic Drainage (SLD), a form of Manual Lymphatic Drainage that you can perform on yourself. This technique may be incorporated into Phase II of CDT, together with:

The success of your therapy also hinges on receiving the appropriate psychological and medical support. Joining an online self-help community enables you to connect with others facing similar challenges in managing lymphedema. This can help you to stay motivated and adhere to your therapy. Additionally, it's important to seek psychosocial support from a therapist who is aware that you are suffering from a chronic condition.

Self-management allows you to participate in the treatment of your disease. It helps to maintain therapy success and to improve your well-being.

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