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Understanding lipedema

Lipedema is a chronic (long-term) condition characterized by the buildup of fatty tissue in the limbs, discomfort, and pain and mainly occurs in women.

Lipedema is a disease that is often misunderstood or mistaken for obesity or lymphedema. In contrast to lymphedema, there is no fluid collection in the tissue. Instead, there is a disproportionate build-up of fatty tissue, mostly in the legs, which leads to pain.

Lipedema cannot be cured, but it is not necessarily progressive when managed effectively. This article provides insights into the symptoms, diagnosis, and holistic management of lipedema.

Lipedema

The disease, seen almost exclusively in woman, often appears around times of hormonal change, such as puberty, pregnancy, use of birth control pills, menopause, or significant weight gain. Lipedema mainly occurs in the lower limbs (legs, thighs, and buttocks) and can lead to reduced mobility, a negative body image, low self-esteem, and psychological stress.

Typical bodyshape:

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What are the symptoms?

Lipedema usually appears symmetrical in shape and size across both legs and, sometimes, arms. The chest, trunk, hands and feet remain unaffected. This can result in shape disproportion – a narrow waist and larger hips and thighs. The area is often painful and tender to touch due to an inflammatory process and a lack of oxygen in the tissue. Accompanying issues such as depression or anxiety disorder can also increase the pain, creating a vicious cycle. Learn more about lipedema signs and symptoms here.

People with lipedema often describe the following:

  • Weight and shape disproportion between the lower and upper half of the body
  • Pain/discomfort in the skin and tissues of the legs or arms
  • Affected areas are tender to touch
  • Hands and/or feet appear normal, with no obvious changes 
  • Loss of distinct ankle shape, with thickening around the ankles
  • Other female members of the family may have similar symptoms

Diagnosing & managing lipedema

So far, there is no dedicated test or tool to diagnose lipedema, however, other underlying diseases with similar symptoms must be ruled out. There is likely a high number of unreported cases because the disease is often misunderstood or misdiagnosed. Conversely, some patients are diagnosed with lipedema even though they do not sufficiently meet the criteria. However, the awareness of lipedema is growing through education of Healthcare Professionals. You should consult an experienced Healthcare Professional if lipedema is suspected.

It may take time to get a diagnosis. In the meantime, you can contribute to a healthy lifestyle with regular exercise and balanced nutrition. Being overweight can worsen your lipedema symptoms; however, you should avoid any short-term dieting. Most diets fail in the end and can result in higher weight than before. Learn more about eating and living healthy here.

Getting a diagnosis from a Heathcare Professional is the first step towards managing lipedema successfully.

Understanding your disease is one of the most important tools for managing it. Learn more about lipedema here.

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